Yesterday was a busy day. I always find I'm more exhausted at the end of the day when I have a day off as opposed to working...J keeps me running around! I booked yesterday off because hubby had an appointment with his specialist. Hubby has kidney disease and lately, his creatinine levels (which measure his kidney function) have been creeping up. The type of kidney disease he has is called IgA Nephropathy (also known as Berger's Disease). What happens is IgA (a protein that helps the body fight infections) settles on the kidneys making it very hard for the kidneys to do their job (filter out toxins, electrolytes, and extra water). IgA is an autoimmune disorder, meaning my hubby has a defective form of IgA that causes his own immune system to attack his body. So once the IgA hits the kidneys, it activates the immune system just like it would if it were fighting an infection.
Unfortunately, there's no way to stop this from happening. Medications slow down the disease, but since I met my husband, I knew he would eventually need a transplant. Luckily, he has an amazing family who are all willing to start the transplant workup when it is time. And after yesterday's appointment, it looks like it is time. His creatinine level was over 400. At 400, that's when the transplant workup begins. The doctor is holding off for one more month just to get another blood test done. The reason for this is because hubby's appointment was pushed forward 2 weeks and he had no choice but to get bloodwork done right after a bad case of food poisoning. So for this month, we are going to try our best to eat kidney friendly foods (foods low in potassium, sodium, and phosphorus and avoid processed foods as much as possible). This will fall a lot on me since I cook and do the grocery shopping. I'm going to try and prepare meals on the weekend since I'm tired when I get home from work and am trying to spend as much time with J. I know we have lots of support with all of this and I know family and friends would be more than willing to step in and help us out.
All of this is definitely scary and makes me worry like crazy, but I know everything is in God's hands. I have to trust God's plan and pray for God's will to be done. This doesn't stop me from praying for a miracle every day!!!
Right now, I'm trying my best to focus on the present and just taking life one day at a time. I think that's best for hubby so I don't drive him up the wall (he's very laid back and doesn't worry about much) and best for the baby growing inside of me who needs a stress free mama.
One. Day. At. A. Time.
No comments:
Post a Comment